Tuesday, June 30, 2015

Catching up on the shitty shit (part tres)

Here's where everything goes to poo. TMI & loss warnings.



So at my last appointment, NYE, everything was hunky dory. That Sunday, 1/4/15, I had gone to the bathroom. When I wiped, I felt something bulging at the end of my vagina. I knew instantly what it was, it was the sac. FUCK.MY.WHOLE.ENTIRE.LIFE. I screamed to Sean that we needed to leave for the ER immediately. We were out of the house in about 3 minutes & I was at the ER being wheeled in in about 10 min.

Once I was checked in & wheeled back to a room, S & I both broke down. Bless his heart, he was still trying to be positive, but I knew this was the beginning of the end. A doctor came & did an exam, she told me that she believed the sac was in my vagina. Then sent me to ultrasound. The tech didn't say a word, but did let us hear our little guy's heartbeat. Then wheeled me back to my room. About an hour later, they admitted me & brought me up to L&D. Unfortunately, this was a much smaller hospital than the one in NJ which had a separate high risk section. So, we had to roll by the nursery & I knew we'd have to hear little lives entering the world during our stay.

Once we were in the room (the exact room I had been in recovering from the TVC less than 2 weeks before), the nurse set me up in the all too familiar Trendelenburg position. We were back to hoping for the sac to retreat into my uterus. The ER nurse said that one of the doctors in my OB practice was coming by, but she had no idea when. So we were just waiting around. S called my mom & dad, they both rushed over. My dad & stepmom hung around for a couple hours, but needed to get going because my stepmom had to get up early to get her chemo port put in (My poor dad was having to watch me go through this shit & his wife was starting chemo the same week.) My mom decided that she was going to stay with me overnight since S had to go home at some point because of the dog.

Around 10:30, the doctor finally showed up. He did a quick digital/visual exam. Explained that we were waiting to see if gravity would help & if so then they would try a rescue cerclage & then hospital bed rest from there out. He explained all the risks & possible outcomes. S & I assured him that we were very aware of all of that & told him about Rowan's loss. He said not to lose hope & that if the situation was going to reverse it usually does so in 12-48 hours. He asked if we had any more questions & then headed out. A little while later, my nurse had come in to change my IV & she told me that the doc "couldn't visualize anything" during the exam, so things looked promising. With that small glimmer of hope, S headed home for the night. My mom went to sleep & I stayed up all night watching TV. I passed out for about an hour around 6.

Around 8 S got back to the hospital & we were waiting for Dr L to come do his morning rounds. He got there around 8:30, right after ultrasound had come by. He confirmed everything from the night before & repeated over & over that he swore he put the stitch in right & tied it tight. He was distraught. He had never had this happen to a patient in over 20 years. He did a quick check of everything, but said he didn't want to use a speculum until things looked a little better on the ultrasound. He said he'd be back in a few hours, but in the meantime he wanted to start antibiotics to try to prevent infection.

After he left, my mom went home. I don't remember too much of the rest of the morning. S was there, some nurses came through & tried to give us some hope. It's a blur.

My doc came back around at about 1 just to check on me (the benefit of his office being across the street). He didn't really have much to say. A lot more "I'm sorry" & "try to stay positive" & "all we can do is wait right now."

After he left, I paged the nurse for help with my bed pan. When she came in she told me that Dr L had approved the use of a bedside commode for me. At this point, any hopes that I had been hanging on to, were dashed. Until this point, I had been 100% restricted to the bed. I knew that him allowing me to get out of bed to use the bathroom meant that things were getting worse or at the very least not getting better fast enough. I declined the commode, I couldn't give up until there was something certain. I expressed to the nurse what I thought the doc lifting the bed pan restrictions meant for me & she just gave me a look that said "Yeah, it looks bleak." She came back a little bit later to fiddle with my IV & said "I'm probably not supposed to tell you this, but ultrasound thinks you may already be leaking fluid. The fluid around the baby is very low." Because of how frequently I had been going to the bathroom, I really had no idea if I was leaking or not, but I didn't think so.

Somewhere in there, I guess right before I called the nurse to let me go to the bathroom, S ran out to grab some food for himself & to fill a script for P17 that my doc wanted to start to try to help prevent labor. ($100 dollars later, I was able to use a single dose out of a 10 dose bottle & now I'm stuck with this shit that I have no use for & will probably be expired by the time I need it again...I digress). While he was gone, my friend came by & she lost it the second she saw me. I told her what the nurse had told me & we just hung out sobbing together. She asked if there was anything she could help us take care of. So I asked her to swing by the bakery & cancel the cupcakes we had ordered for that Friday that we were planning to use for an announcement photo. She headed out & within about 10 minutes S was back. I told him what had happened while he was gone & then we were back to waiting. S called the vet to set up boarding for her the next day so he would be able to sleep at the hospital that night.

Around 3 my doc was back & reviewed the report from ultrasound with us. He confirmed that the fluid around the baby was low, but he didn't think I was leaking. Instead, he believed that much of the fluid had shifted into the portion of the sac that was in my vagina. He did a ph test to see if there was any fluid in my vagina & that came back negative. Small win. He said he had to go do a c-section & then he'd be back to check on us.

He came back around 6. He didn't have anything new to say. It was all over his face. He was devastated by this. He told me to try to get some sleep & he'd be by first thing in the morning.

Around 7 some of my friends came by & hung out for a while. My mom came back at some point. It was nice to have some people there who could lighten the mood, people who refused to give up on my baby boy. After my friends left, the nurse came with all the surgical consent forms for me to sign "just in case." Just one more sign that things were coming to an end. She offered to give me a catheter so I could get a break from getting on & off the bed pan. S & I talked about it, I was scared to have that done, but in the end we decided that it might be for the best so I said yes. It hurt like a mother fucker, but was over fast. I kicked S out around 11 to go get some sleep, I had a feeling the next day was going to be a long, hard day. A little after that, a guy from the lab came to draw some blood so they could type & match that & label me in case i needed blood at some point. Then the night nurse came in to check vitals & doppler Carson. She had a really hard time finding him & his heart rate was much lower than his normal. After that I decided to take an Ambien & passed out quickly.

I guess around 6:30, I decided that I might need to go #2, my mom left the room & the nurse set me up with the bed pan. I waited & waited, nothing happened. I pulled the pan out & there was fluid in it. My water had just broken. I called the nurse, she rushed in, tested it & confirmed things. I called S, he was already on his way up. My mom came back in & cried with me & then went into the bathroom & threw up. The nurse called Dr L. He ordered ultrasound & they were in the room in about 10 minutes. Before she left, I asked her to show him to me & print a pic for S since he hadn't made it yet. She of course did, here's the last picture of my guy on the inside.

I didn't take the time to look at the picture at that moment, just gave it to my mom to put somewhere safe. If I had looked, I would have been prepared for what Dr L was going to say. 

S got there about 5 minutes after ultrasound. We cried & cried, he sat on the floor next to my bed just holding my hand waiting for Dr L. He was there by about 8 I guess. He told me that Carson was already partially in my vagina. Looking back at the ultrasound, I can clearly see his poor head lodged in my cervix because of the cerclage. He said that we'd have to go into the OR to remove him. I was upset, I wanted to at least be able to deliver him like I did Rowan, but that just wasn't in the cards. There was no way for Dr L to be able to remove the cerclage around him. We reviewed what happened after I delivered Rowan & all of those concerns. Dr L explained his game plan with me & told me that he really wanted to avoid another D&C/E if at all possible. He said I had been extremely fortunate to come out of that with no scarring & he really wanted to preserve that. He headed out to call the office to let them know he would not be in for a few hours. The nurse came back & advised that Dr L thought I should get an epidural, but was leaving that decision to me. I decided to get it, not knowing what I was in for.

It took the anesthesiologist about 30 minutes to get there, they made everyone (even S) leave the room. They rolled me to my side because they were concerned that sitting me up might cause things to progesss before they were ready for me. The epi was seriously so painful I almost passed out. Once that had started to work, they wheeled me to the OR, got S in a gown & mask & let him in. I started to shiver/shake, the anesthesiologist said that was a normal effect of the epi. Dr L began working almost immediately. I just tried to focus my attention on S, but I kept hearing Dr L swearing. Every time he did I immediately thought "FUCK! I'm bleeding. I know I'm bleeding like crazy." & I could see it in S's eyes he was having the same thoughts. At some point, he said something about the baby being out. A moment later, he stood up & said "You wanted to see the baby?" We both replied that we did. He made a face & hesitated, then told the nurse "Show them the head" 

SHOW US THE FUCKING HEAD????? I immediately had the most morbid thought, that I was going to look up & just see my son's head in someone's hand. Of course that was not the case. They lifted him up, all bundled in a blanket or something & all that was visible was the head. He was perfect. His tiny little mouth was open, it was so precious. 

Then he got back to work. A few minutes later, a nurse came over & whispered "Your placenta is out, it looks in tact & no bleeding." Thank you thank you thank you! They wrapped things up & began to clean me up. Dr Landry came over & said it went relatively well & he'd be by to talk in a little bit. He left & S left with him. I started shivering more & more. It was completely uncontrollable. They started piling warm blankets on me & assured me that this was all normal. All I could think was that I was bleeding a ton & that's why I was so cold. They must have missed something, this can't be normal. But I had to trust for now.

They wheeled me back into my room, where I continued to shiver like a crackhead going through withdrawls. After begging, they brought another 10 blankets & piled them on me. I finally started to warm up some, it took about 45 minutes for the shivering to stop. Finally Dr L came in to review things with us. He explained that Carson's head had been stuck & he had a very difficult time getting him out. He said something that implied that he had not come out in tact, but wouldn't tell us explicitly what happened.

He said that the cerclage was still in tact, but had pulled through a portion of the wall of my cervix. Based on this his only recommendation moving forward was a transabdominal cercalge (TAC). I had read about that, so was familiar enough with the procedure. He said that he had only ever scrubbed in on the procedure once, 20 years ago when his ex had it done. He had never done it himself, so we'd need to do some looking around & find a qualified surgeon. I love that he knows his limits & isn't willing to take that kind of risk with us. He apologized again & again, told us he wished he could have done something more to prevent this, looked like he was going to burst into tears. I think he said some more stuff, but I honestly don't remember. He headed out for the day.

The nurse came in & we reviewed everything that we wanted for Carson (we had talked about it a few times before), but I had this fear that they would do something & lose my baby. I asked her if she could come back with his weight & stats at some point. She said she'd probably not be able to give us a length, but she would do what she could. She removed my catheter & went off to tend to Carson. My dad got there, my mom left & I sent S to go get himself some food & bring the dog to board. 

When the nurse came back, she said that Carson was delivered at 9:55a & was 80 grams. She had some forms & needed to get my thumb prints. She had gotten his tiny footprints for us, he was so much smaller than his sister even though he was only 8 days younger. His teeny feet were smaller than the thumb prints I had to do. But it gave me some pride to fill out forms as his mother. 

The nurse said that they were going to need to move me to the postpartum area of the floor. I really had no desire to go there, but didn't have much choice.

(It's been about 3 or 4 months since I started this post, but I needed to get back to this.)

Once I got to the my PP room, Sean got back & my dad headed out. My best friend came to visit & brought us some dinner. Once she left, we just kind of hung out for hours, both of us completely numb & in shock. Sean stayed at the hospital with me that night. Despite taking Ambien again, I was up every 2 hours all night. I took a walk around the halls because I knew that my doc was going to want that before he'd discharge me. On one of my walks, I ran into the CNA from my first night in the hospital. She had come over to that side to look for me because she had just gotten in & found out what happened. She gave me the biggest hug, told me how sorry she was & told me she was praying for us. It meant a lot that she cared to come looking for me. I went back to my room & tried to get some more sleep. 

The next morning, Dr L came to see us. He was a mess. He apologized again & again. He excused himself from the room for a few minutes, then came back. He had clearly been crying. He talked about next steps for us, told me to come to the office in a week for a follow up & that he'd call me RE in the morning to go over it all. He told me that when they brought Carson to us, not to remove his blanket, just look at his head. "He was damaged." Those words echoed, "He was damaged." My perfect little boy was "damaged" because I failed him, we failed him. He hugged us & headed out. After that, we called the nurse & asked to have Carson brought to the room. While we were waiting, an aide came skipping into my room with a clear bassinet & a waving ALIVE baby, singing "Here he is to see you!" I lost it. I screamed at her to get out. She looked at me completely confused. I said something along the lines of, "That's not my baby, my baby is dead." She looked at me horrified & scooted out of the room. She came back 10 minutes later, sobbing & apologizing. I couldn't even be sympathetic, I just told her to leave. That was so fucking awful. I'm sitting here waiting for my son, my lifeless precious boy, & this chick overlooked the sign on my door that indicates what happened, & brought me someone's very healthy, very alive baby.

About 20 minutes later, the charge nurse came with Carson & she said the same thing that Dr L said, "leave his blanket on." Then she handed him to me & said she'd be back in about 45 minutes, she had to have him down to pathology by a certain time if we wanted him to be able to be released to the funeral home in a day. Apparently, we didn't have a choice, the state of Louisiana requires autopsies to be run on all births before 20 weeks. Or something like that, I spaced out. She needed to hand my son to me & leave. Finally she handed him to me with his face covered & left the room. I could feel, through the blanket, that something wasn't right, but couldn't tell what. Sean told me I could hold him the whole time, he would be ok if he didn't get to hold him. I wasn't going to fight with him, I knew he'd change his mind. I uncovered Carson's face. He was breath taking. I know every parent thinks that, but I literally couldn't breathe. I just sat there with tears streaming down my face. He had the most perfect tiny lips & sweetest nose. Finally Sean spoke & said "Can I hold him?" So I gave him to Sean. I don't know if I'll ever be able to express what it is like to see him holding his child. It's just the most beautiful & heartbreaking thing ever. He loves his children so much, it just breaks my heart that he always has to say goodbye to them. He brought him to his chest & mumbled something, kissed his forehead & handed him back to me. We took a couple pictures of him & then, before we knew it, the nurse was back to take him away from us. I don't know how I managed, but I kissed him & gave him back to her knowing it'd be the last time I would ever hold him. We asked her if they had a list of funeral homes or anything, she wasn't sure but she'd be back. So she left, we cried for a while, then I went to take a shower so we could get out of that hellish place. While I was in the shower, the nurse came back & gave him a few places. I could hear him on the phone when I was drying off. When I came out, he told me that he made arrangements with one home & told me what it'd cost us. It was 4 times what we paid in NJ, but he didn't want to call around. I begged him to call another one, so he did. He left a message because they said the owner likes to take care of these cases personally. Immediately, I felt better about this place. A few minutes later, we got a call back & the price from them was much better. So we arranged for them to pick Carson up & we'd go there to take care of paperwork in a couple days. After that, we gathered up all our stuff & left. The last time we drove away from this hospital was the day after my cerclage was done, we were so confident, so foolish to think that the next time we drove away from there our son would be in the backseat & we'd finally have our little family. What fools we were to think we'd gotten so lucky. 

We came home, cried some more. Someone brought us something to eat I think & then we passed out. The next day we went to the funeral home. We sat in the parking lot, completely paralyzed by sadness. For the second time in 9 months, we were making final arrangements for our child. No parent should ever have to do this, ever. Somehow we mustered up the strength to go inside, make the arrangements & pick out his urn. A couple of weeks later, we went back to pick him up & bring him home. He now sits on our mantle with his big sister.

This post is hella long, but I'm just about done. I don't know if anyone is reading this, but if you are this is your warning. I'm going to share the only pictures I have of my children.

This is a picture of their little urns next to each other. I was so happy that there was something similar to Rowan's when we picked out his. Rowan is the blue one with the butterflies, Carson is the silver one.



This is a side by side of each of them. Rowan is on the left born at 17w4d, Carson on the right born at 16w3d. It amazes me just how different they were, but they had the same nose & mouth. These are my children, my son & my daughter. They are my heart, my everything. I miss them more than I have words to express.




2 comments:

  1. My heart is completely broken for you. I hate that you and S have had to go through this at all, much less twice.

    Thank you for sharing your beautiful son and daughter. They are both beautiful. <3

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  2. They are so, so beautiful <3 thank you for sharing Carson's birth story. I am so sorry, honey. This is so unfair. Your children are so loved - all they ever knew was love <3

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